My son has a health condition, and his treatments don't seem to be working very well. I read about a new, promising treatment that might help, but it's only available in another country. Should we go there for treatment?
When your child is sick or has special medical needs, it's natural to want to help in any way that you can. After all, you want your child to get the best treatment possible. But taking a chance on an unproven treatment or therapy that hasn't been studied here in the United States could do more harm than good.
Other countries don't have the same health care laws and regulations that we have here. There also can be problems with communication if you don't speak the language, and this can lead to misunderstandings and mistakes. Doctors from other countries also might have trouble getting your child's medical history to make sure that a treatment will be safe. There's also a chance that your health insurance might not help pay for treatments given in other countries.
Then there's the harm that might come to your son from getting a treatment that hasn't been strictly regulated or closely monitored in the U.S. or the other country. Possible dangers include:
- getting counterfeit or poor quality medicines
- getting injections with needles that might be reused and contaminated
- exposure to antibiotic-resistant bacteria
If you're unhappy with your son's current treatment, tell your doctor. If you have already spoken to the doctor but feel like more can be done, consider getting a second opinion (speaking with a different doctor about your son's health condition).
Another option might be to enroll your child in a clinical trial if a suitable one is available in the U.S. Clinical trials study possible new treatments or therapies. For a treatment to reach the trial stage, there has to be some reason to believe that it will work.
In a clinical trial, some patients get the new treatment, others get the usual treatment, and less commonly, some might get a placebo (a fake treatment or sugar pill that contains no medicine at all). Then, doctors compare outcomes. If your son is in a trial, you probably will not know which treatment he gets.
Your doctor will recommend a clinical trial if he or she thinks your son is eligible. Then, the trial doctors will decide if your child is a good fit for the study. If he is eligible, learn as much as you can about the trial and the treatment being studied. Consider the benefits and the possible risks so that you can make the best decision for your child.
For a list of clinical trials that your son might be eligible for in the U.S., visit the federal government's clinical trials website.
Reviewed by: Larissa Hirsch, MD
Date reviewed: August 2015
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American Childhood Cancer Organization
ACCO provides support and information for children and teens with cancer.
American Medical Association (AMA)
The AMA has made a commitment to medicine by making doctors more accessible to their patients. Contact the AMA at: American Medical Association 515 N. State St. Chicago, IL 60610 (312) 464-5000
U.S. Food and Drug Administration (FDA)
The FDA is responsible for protecting the public health by ensuring the safety, efficacy, and security of human and veterinary drugs, biological products, medical devices, our nation's food supply, cosmetics, and products that emit radiation.
ClinicalTrials.gov, a registry of federally and privately supported clinical trials around the world, has information on a trial's purpose, who may participate, locations, and phone numbers for more details.
American Society of Gene & Cell Therapy
Learn about the latest gene and cell therapy clinical trials.
Complementary/Integrative Medicine Education Resources (CIMER)
Provides educational resources to health care professionals and patients about the current understanding of complementary medicine.
This website is for children with special needs, their parents, and other caregivers and contains information and health supplies.
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